We had our neuro consult last Wednesday and as we suspected, there might be cause for alarm for our John.
We even got the "Angelman syndrome" speech.
Regardless of if he has it or not, he will need therapy to correct his walking and fix his expressive skills.
As you can imagine I started reading about Angelman's Syndrome and all I can think about every day is, "please don't let him have it". Its become my little mantra as if I say it enough times, somehow it won't happen.
We are going to get him a brain MRI under sedation, an EEG and a karyotype study. God please don't let my little guy have AS!!
I can handle anything as long as he is not retarded. If his brain is alright I can handle anything else. I don't want my child to be special needs, not in this idiotic, discriminative country!!!
Just please... let my little guy be alright.
I will keep you posted as we move along on this journey.
Please keep him in your prayers..
T.
About Me
- Tina Kewy
- I was born in 1978 and I have lived all over the world over the years. My wanderlust was quenched when I married my husband, George, and then I settled down. I worked as a kindergarten teacher before immersing myself full time to sculpting. I have been sculpting since I was 7 years old and in the last 16 years I have been making One of a Kind babies which have been reproduced in all mediums both privately and by doll companies. I am a Navy wife, a child of God and mother to 7 year old twin boys. Both my little guys are "special" and I feel blessed I was chosen to be their mother. Our family is completed by Beau Hugs, our 9 year old Blue Siamese & our recent addition, Pandora, a Black Lab which is John's assistance/service dog.
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